Privacy, Confidentiality and Personality Rights in Biobanking and Genetic Research with Human Tissue
University Medical Center Göttingen, Germany, 16-18 July, 2009
Call for Papers
Second International Conference of the Tiss.EU project
Organised by:Department for Medical Ethics and History of MedicineGöttingen University Dr Christian Lenk, Dr Katharina Beier, Prof Dr Claudia Wiesemann with input from the EU projects:GeneBanc (Leuven) and PRIVILEGED (Maastricht/Sheffield)
Privacy
The acronym Tiss.EU (www.tisseu.org) stands for “Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union — an Evidence-Based Impact Analysis”. The project’s aim is to assess the impact made by European Union’s regulatory activities to date on research with human tissue in the member states (plus Switzerland). To this end, the project will gather and compare national legislative instruments and ethical guidelines with the help of external experts and make these data available to the public. As a culmination of the project, recommendations are to be drafted for possible ethical and legal guidelines in the interests of European-wide convergence and harmonisation. For the Second International Conference of the Tiss.EU project in Göttingen, Germany, from 16th to 18th July 2009, we invite contributions on the following topics: National regulations concerning privacy and confidentiality in the field of human tissue research
Practical approaches in ethics and law to the protection of privacy and confidentiality
Personality rights as means for the protection of human tissue donors’ rights and interest?
Challenges to privacy and confidentiality in the field of human tissue research
Protection of vulnerable populations and tissue research
Theoretical approaches to the meaning of privacy and confidentiality in the context of biobanking and genetic research with human tissue
The conference language will be English. Each presentation should have a duration of approximately 20 minutes. Key-note speakers are, amongst others, Kris Dierickx (Leuven), David Townend (Maastricht), Lars Ursin (Trondheim), Jane Kaye (Oxford). The costs for travel and accommodation for the invited speakers will be covered by the organisers. The conference is open to the public and can be attended by interested academics. The conference fee for visitors is 30,00 € (or, including conference dinner, 60,00 €).
Please send an abstract of your proposed presentation no later than 10th June 2009 to:
Dr Katharina Beier
Tiss.EU Project Officer
Humboldtallee 36D-37073 Goettingen
Tel.: 0049-551-394184
Fax: 0049-551-399554
